I have been studying decision-making capacity and surrogate decision-making for over 15 years. This work has included studies of persons with schizophrenia and Alzheimer's disease, development of assessment tools, and philosophical analyses of core normative issues. See my book on this topic. A recent book chapter on the ability to value as a needed criterion for decisional capacity. A recent talk I gave can be viewed here. Papers on the related topic of surrogate decision-making can be found on the democratic deliberation and bioethics page. | Kim SYH, Karlawish J, Kim HM, Wall IF, Bozoki A, Appelbaum PS. Preservation of the Capacity to Appoint a Proxy Decision Maker: Implications for Dementia Research. Archives of General Psychiatry 2011;68(2): 214-220. Kim SYH, Appelbaum PS, Kim HM, Wall IF, Bourgeois JA, Frankel B, Hails KC, Rundell JR, Seibel KM, Karlawish JH. Variability of Judgments of Capacity: Experience of Capacity Evaluators in a Study of Research Consent Capacity. Psychosomatics. 2011; 52(4): 346-353. Kim, SYH. The ethics of informed consent in Alzheimer disease research. Nature Reviews Neurology. 2011; 7: 410-414. Seyfried L, Ryan KA, Kim SYH. Assessment of Decision-Making Capacity: Views and Experiences of Consultation Psychiatrists. Psychosomatics 2013; 54: 115-23.
Kim SYH. The Place of Ability to Value in the Evaluation of Decision-Making Capacity. Philosophy
and Psychiatry: Problems, Intersections and New Perspectives. D Moseley and
G Gala eds. Routledge, New York. 2016 Eckstein L, Kim SYH. Criteria for Decision-Making Capacity: Between Understanding and Evidencing a Choice. Journal of Law and Medicine. 2017; 24: 678-694. Doernberg SN, Peteet JR, Kim SYH. Capacity Evaluations of Psychiatric Patients Requesting Assisted Death in theNetherlands. Psychosomatics. 2016. DOI: 10.1016/j.psym.2016.06.005. |